Yo, y porque te quiero ayudar con la Esclerosis Multiple

Inicié este blog porque tenía miedo cuando me diagnosticaron de esclerosis múltiple (EM) pero hoy me doy cuenta que tal vez es la mejor cosa que me haya pasado. Quiero que otros con EM se den cuenta de esto también. Pretendo facilitar herramientas hacia un tratamiento alternativo dirigido especialmente a personas quienes prefieren el uso de medicamentos alópatas (drogas convencionales) y a su vez la vida diaria no les permite diferentes opciones.  Las alternativas disponibles a las que me refiero en este blog han sido comprobadas y funcionan interrumpiendo y además contrarrestando el desarrollo de la EM.

Creo que el cuerpo tiene la capacidad de curarse a si mismo si le brindas las herramientas necesarias para hacerlo. El tratamiento que he descubierto y presento aquí involucra una dieta estricta, ejercicio, terapias alternativas, descanso y una renovada manera de pensar; que mejorará su vida en todos los aspectos, así como ha mejorado la mía. Como he mencionado anteriormente, la EM es la mejor cosa que me ha pasado, provocó en mi vida un gran cambio positivo. Ya no sufro depresiones, problemas estomacales, y el estrés de la vida diaria ha desaparecido. Nuca he vivido tan feliz como lo estoy ahora y ojala que a todos los que viven con  EM se puedan igual. La información de este blog beneficiara  a cualquier persona con EM pero sobre todo a los recién diagnosticados y a los que aún no estén tan afectados por esta enfermedad. Mientras más pronto adaptes tu vida, más éxito tendrás en el mejoramiento de tu salud. La información que aquí encontrarás proviene de diversas fuentes incluyendo libros, personas con EM y el internet. Siempre me aseguro de poner información ya comprobada. También hallaras una bibliografía en la pagina ‘lectura’. Solo les pido paciencia con la traducción de este blog.

MS: The Drugs Don’t Work

Finally today in the news: drug trials prove that disease modifying drugs do not work to slow the progression of MS. All they do is damage the immune system of people who desperately need to strengthen theirs. The four drugs in the trial were Avonex, Betaferon, Copaxone and Rebif. The only reason these drugs are pushed onto MS patients is because of the outstanding amount of money which pharmaceutical companies make from them. Come on people; stop using the drugs and switch to a healthy lifestyle, that is what will stabilise your MS. Please read the pages of my blog if you are interested in an alternative treatment, Judy Graham’s Multiple Sclerosis – A self Help Guide to Its Management is an essential read. Read here for more information of the drugs trial.

More important links on MS Drugs being ineffective:

http://www.nytimes.com/2012/07/18/health/research/multiple-sclerosis-drug-doesnt-stop-disability-study-finds.html?_r=0

http://www.direct-ms.org/sites/default/files/Embry%20MS%20Drugs%20Don%27t%20Work%2007%2010.pdf

Stabilise your MS by balancing your fats

It is essential to reduce your saturated fat intake if you have MS to a maximum of 15g a day and to avoid hydrogenated fats, which are just as useless for the body. According to Professor Swank, although it will be un-apparent for several years, even a slightly higher amount of fat than 15g will result in a slow deterioration followed by an acceleration of the illness. Having followed 150 MS patients on their low-saturated fat diet for 35 years Swank realised that 90-95% of patients who begun it in the early stages of their MS with little or no obvious disability, did not worsen during that time. People who did not stick to the diet however, did get worse.

It is not just saturated fats that need to be reduced however. Essential Fatty Acids (EFAs) are extremely important for people with MS; who have an unusual fatty acids pattern in their blood.

Because EFAs play an essential role in the maintenance of nervous tissues, they are needed in MS; where the nervous system is under attack, so that it may be repaired.

The myelin sheath, red and white blood cells, membranes, platelets, brain and blood plasma are all deficient in EFAs in people with MS. It is thought that lymphocytes (white blood cells) depend on the condition of cell the membrane. If a cell membrane is deficient in EFAs it becomes rigid causing certain of these lymphocytes to be less effective immunologically. A deficiency in EFAs also causes red blood cells to move slower than they should and have a lower surface charge in people with MS.

EFAs improve brain cell communication and ensure that cell membranes are fluid and flexible. It is suggested that by sticking to a diet rich in EFAs, people with MS will correct the problems mentioned above and have less demyelination resulting in less damage.

2 Types of EFAs –both are essential for fighting MS: both must be consumed so that the body can make them into longer chain, more biologically active unsaturated fatty acids, which are used by the brain. The derivatives** of these EFAs are more important than the parent* fatty acids. Eating the parent foods is fine, but it has been suggested that people with MS are possibly not efficient at converting them into their valuable derivatives.

1)      *Linoleic acid (Omega 6) sunflower and safflower seeds, seed oils, vegetable oils, legumes etc

Regulates slow-moving and low surface charged red blood cells common in people with MS

Becomes (with the addition of bonds):

**Gamma-linolenic acid (GLA) oats, evening primrose oil, borage oil, blackcurrant oil, breast milk etc  – Is 50% more unsaturated than Linoleic acid, is rare and makes some prostaglandins, essential for health.

Becomes (through elongation of chain): DiHomo-gamma-linolenic acid with the addition of double bonds becomes:

**Arachidonic acid organ meats; liver, kidneys, brains etc

Involved in the production of prostaglandins, very important for healthy cells and said to help regulate immune system – liver is the best source.

2)      *Alpha-linolenic acid (Omega 3) green leafy veg; broccoli, spinach, kale etc, legumes, linseed

Becomes Eicosapentaenoic acid which becomes:

**Docosahexaenoic acid Fish and sea food

 

Prostaglandins are made by GLA and Arachidonic acid (as outlined above) as and when they are needed.

– In MS, platelets clump together, prostaglandins are said to fix this abnormality.

– In MS the immune system attacks the body’s own matter. Series 1 Prostaglandins are said to regulate the T suppressor cells – a type of T lymphocyte (white blood cell) – which prevents the body from attacking itself. These cells are particularly low during an MS relapse and may become defective in a shortage of Series 1 Prostaglandins. Prostaglandins also stop lymphocytes which attack the central nervous system.

Enough polyunsaturated fats need to be introduced into the diet before there is an effect on the severity and duration of relapses. If these EFAs are not taken at the same time as enough anti-oxidant vitamins and minerals i.e. vegetables, they will be oxidised making peroxides which cause a lot of damage. Take a look at the MS diet for more information.

Multiple Sclerosis: Stress and Mindset

Stress – It is important to avoid stress as much as possible. The body experiences stress as a life threatening situation, if you put it through this too many times, it will lead to problems with adrenalin and the body can only live in constant stress for so long before it begins to break down. Stress depletes vitamins and energy, it also makes the brain release cortisol and other hormones which are damaging to the body. So people who suffer from chronic stress or nervousness are left with a weak immune system.

It is unrealistic however to think you can avoid it completely. The answer is to learn how to handle stress so that you do not have an adverse reaction to it. A New Earth by Eckhart Tolle is a very good guide for training yourself to overcome stress, I highly recommend reading it; for me it has been a life-changing read.

The Power of the Mind

You are what you eat, but also what you think. I am convinced that the reason for my MS is my inability to deal with stress/stressful situations. From being overwhelmed at university to the management of problems with friends, I have let myself get ill by not looking after myself or taking time out for myself. Overworking and over-analysing are key issues which often lead to chronic illness. Avoid them, and learn to deal with situations instead of letting them get on top of you or get you down. Your health is no.1, remember that at all times and stop over thinking things. A self-help book I strongly recommend for anyone who wants to learn to stop thinking, and start being is A New Earth by Eckhart Tolle. You can do anything if you put your mind to it, don’t let anyone tell you your illness is incurable.

Positivity goes a long way. There is absolutely no point in being pessimistic or feeling sorry for yourself. These attitudes are likely to worsen symptoms and accelerate the deterioration of your body. What you must do is believe 100% in the treatment that you chose to follow and be disciplined when it comes to diet, exercise and sleep. Do not talk about your treatment to those who don’t believe in it. Don’t let their criticism affect your devotion to it. This is your journey, so aim high and give it everything you have. There is no need to over-think your symptoms, try to forget about them, stop talking about them and you may find that they lessen or actually disappear completely.

Do not give up on your hobbies; enjoying life is part of maintaining health. You must be happy to overcome disease, so try to practice activities that make you happy regularly.

Multiple Sclerosis: Land of no Emotion

Having MS is difficult sometimes. It stops you doing things that you used to be able to do with such ease and without a second thought. Like jumping on your bike, or running for the bus. Sometimes fatigue dictates your day and this means you need to rest often. The food you eat is so important that breaking your diet is just not worth it and makes eating out a bit of a nightmarere. You need to exercise regularly without exception and in a way that doesn’t allow your body to over-heat. All of this becomes easy with discipline.

I have gradually come to realise that having MS also means you need a tight control over your emotions. This has mostly been possible in my case, especially since reading Eckhart Tolle’s A New Earth which has taught me to understand the source of most hurtful emotion and thus stop them in their tracks enough to not let them affect me anymore. I am convinced that my inability to deal with such emotions prior to reading this book, is actually one of the reasons for my MS. In the past two years, I discovered that when somebody close to me, or to a loved one, died; the sadness I felt took over and I was overcome with symptoms. This has so far happened three times, and I know I need to protect myself from the serious damage an emotion such as sadness can do, but when this has happened I have been incapable of taking control, at least not before allowing it to do some harm first.

It is not just painful emotions that need to be kept at bay, however. I began to realise this the day before one of my best friend’s hen night. I was frantically planning to make it all perfect for her. A surge of over-excitement came over me only to be followed quickly by all-over shaking. I had been carrying out a task perfectly fine one minute and then been injected with an inability to do anything the next. I had to rest straight away, there was nothing else I could do, physically or mentally.

Since then I have slowly begun to understand that excitement – or any emotion that you let yourself get carried away with, come to think of it, can be a really bad thing. I have been reflecting upon the importance of what I learnt from Eckhart Tolle’s book and encourage anyone with problems controlling any type of emotion, to read it; it is a revelation. Even if you don’t have MS, it will teach you of a healthier way of seeing the world.

Eating to Reverse Multiple Sclerosis

I have had MS for three years now. Although I was told by neurologists that my lesions were aggressive and active and that as a result I needed to take equally agressive drugs, I am convinced that I am managing to stabilize my MS through diet, rest and exercise as well as other therapies outlined in this blog. Today, thanks to a link on a fellow blogger’s ms blog: msguidedjourney, I watched a video of Dr Terry Wahls who recovered from secondary progressive MS. Her MS left her in a wheelchair and faced with the idea of a shrinking brain, she started to investigate a way to reverse the effects of the illness. Although the diet I follow is not identical (I have cut out most meat, except organic chicken and liver) the principle is the same. Have a look at her video and see what you think.

Multiple Sclerosis: Rest and sleep

Rest I can’t stress enough how important rest is. Even if you don’t have MS you should rest when you need to! Although I know I often forget to take a break; I then really regret it when symptoms come on. I have found that the best way to ensure they don’t is to take regular breaks with my feet up. I actually sit upside down in an armchair with my legs in the air, and I find this works against a symptom of heavy legs that I get. Put your legs up against a wall – it is a yoga position linked to rejuvenation. The benefits of resting often are outstanding. You should also seriously consider working part-time. Since I made the switch, I have found time to regularly practice the activities that make me feel good like swimming and yoga, and have been able to focus on my health, attending various therapies and preparing nutritional meals as well as resting well so as to keep symptoms to a minimum. I also find it helpful to take a nap in the early afternoon; it energizes me and helps me get on with the rest of the day.

Mental fatigue is harder to deal with than physical fatigue, but please don’t let it get you down. I know it is disheartening when you cannot concentrate on a simple task, but make the most of those moments by doing something good for your health: meditate. I am new to the world of meditation, but trying to incorporate it into my daily life and have often found it very uplifting and revitalising. If you can’t think, then you are in the perfect place to let go and meditate – there are people who never manage to stop thinking; so you see MS is often a blessing in disguise.

Sleep – It is essential to sleep well. Being run down, sleep deprived or stressed have a very unhelpful effect on the immune system and lead to inflammation – and MS is essentially inflammation. I am at my worst after a late night, and find that going to bed early prevents many of my tiresome symptoms from appearing at all during the day. A good night’s sleep can work miracles. I sleep from 8 to 12 hours depending on my levels of fatigue. I actually sleep much better now that I have MS, I had always been a very light sleeper before  and now I can sleep almost anywhere – so I guess my body is giving me the tools I need to help it recover.